Episode Transcript
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Speaker 1 (00:00):
Good morning. This is another edition of Miami Valley View.
I'm Jeff Stevens and I am here with a friend
of mine, Breck Jordan is with me this morning, and Breck,
we are usually hanging out having a great time over
at phrase Pavilion, But this morning we are going to
be talking about something very serious, and I know that's
very near and dear to your heart. We're going to
be talking about Parkinson's and most specifically, we're going to
(00:22):
be talking about an event that's coming up here in
about four weeks. But yeah, we're talking about Parkinson's disease
this morning.
Speaker 2 (00:28):
Good morning, Jeff. Thanks for having me. I appreciate it. It's
great to be here.
Speaker 1 (00:32):
Yeah, so first of all, we were kind of talking
just a minute ago. Parkinson's disease is a very personal
thing for you.
Speaker 2 (00:40):
Yes it is. My father, Ronnie was diagnosed with Parkinson's
disease in twenty eleven and unfortunately I lost him in
twenty twenty.
Speaker 1 (00:49):
Very sorry.
Speaker 2 (00:50):
Yeah, thank you.
Speaker 1 (00:51):
And you went through stuff that probably most people a
have no idea about. Be you probably never thought yourself,
you know you would be going through as a daughter.
Kind of share that with everybody, and why this cause
is so important to you.
Speaker 2 (01:07):
Well, I think that the most important thing I can
say about this is that so many people don't really
have a clear concept of what Parkinson's disease is and
what it can entail. Michael J. Fox has done a
fantastic job of kind of being the face of PD
for so many people, But there's so much deeper symptoms
(01:29):
that it can occur with this disease. It's not just
shaking and tremors and that sort of thing. It can
affect every single aspect of life. It can affect your digestion,
it can affect your cognitive abilities. There's a number of
mental health issues that can occur with it. Gait, walking, mobility,
(01:49):
all of those things can be affected by Parkinson's disease.
And it's so important that we get the word out
so that people can be aware of what their friends
and neighbors and family could be going through through with
this disease.
Speaker 1 (02:01):
And obviously, like you said, Michael J. Fox has kind
of become the face of this and it's difficult. You
just everybody loves that guy and it's so hard to
see what he's going through. But I'm telling you, he's
a fighter. I mean, was it a month ago he
was on stage with Cold Play?
Speaker 2 (02:19):
I know it was so cool.
Speaker 1 (02:20):
Oh, I mean every time I watched I saw a
thousand clips of that, and every one of them, I'm
just sobbing thinking he's doing it. Man, He's still doing
it and still fighting.
Speaker 2 (02:29):
And absolutely and there's so many other folks out there
that are doing the same exact thing with this disease.
So the Parkinson's Foundation is here to support those people
and their families, whether they're out there rocking on stage
or if they're at home doing the best that they can.
Speaker 1 (02:45):
Yeah. Now, the Moving Day is coming up on September
twenty eighth, so basically four weeks from this weekend. Tell
me about that and how you started getting involved in that.
Really it started in Columbus for you, right.
Speaker 2 (02:57):
That's correct. Yeah, after my dad was dis we signed
up and began participating with the walk in Columbus because
there wasn't a walk in our Dayton area. And we
did that for probably five years or so, and the
Foundation reached out and said, hey, what do you think
about trying to move to bring a Moving Day to Dayton?
And I said, let's do it. So twenty nineteen was
(03:18):
our first year in Dayton to host a Moving Day.
It was a terrific success. A lot of people showed up,
we raised a whole lot of money. It was great.
We planned an even bigger and better event and then
COVID happened.
Speaker 1 (03:32):
How many times have you heard and then COVID.
Speaker 2 (03:35):
Yes, So, but we are back on track. We've been
back in person since twenty twenty one, and we are
back this year. The big news this year is we
have moved the event. It's been traditionally in the spring.
This year we have moved to the fall. We did
a little swap with Moving Day Columbus. They took our
spring date, we took their fall date, okay, and so
(03:55):
we are in September this year, so September twenty eighth,
like you mentioned. Additionally, we are starting it a little earlier.
Registration is going to begin around nine. The walk itself
is going to be closer to ten. We kind of
were trying to take into account that it's festival season
in the community, so we want to have everybody come out,
start the day right, get some exercise, move with us,
(04:17):
and then go, you know, enjoy all the fun foods
and festivals in the area for the weekend.
Speaker 1 (04:21):
So yeah, yeah, that's that's a yeah, that's such a
great weekend. Usually the weather's fantastic at the end of September.
So how can First of all, where is the walk?
Speaker 2 (04:30):
The walk is at phrase Pavilion about that, imagine. I
love that and it's been a really great location for us.
We've been there. This will be our third event there
and it's fantastic because everything is so nicely laid out.
There's a lot of paved services, so if we do
have folks with wheelchairs, walkers, that sort of thing, it's
comfortable for them to walk. And then plus it's just
(04:52):
a beautiful park and there's benches everywhere if you need
to sit down and take a break for a moment,
sit down and enjoy the pretty surroundings.
Speaker 1 (04:59):
Absolutely, so it's coming up. Moving Day is September twenty eighth.
Where is the best place. If somebody's hearing this, I
want to be involved, I want to donate. I want
to get involved in Moving Day. Where should people check.
Speaker 2 (05:12):
Out Moving Day? Dayton dot org is their one stop shop.
They can go there to make a donation, they can
go there to register. If you are someone that has
a personal connection to the disease or feels particularly passionate.
Set up a team, be a team captain, establish a team,
and then you can invite all of your friends, family,
(05:33):
co workers. We have a lot of people that do
that with work, their work friends, so that's a great
way to participate as well. So you can go in,
set up your team, invite others to join you. You
can fundraise. To be honest with you, you don't even
have to fundraise. You can just register and come and
walk and support as well. We do a really beautiful
(05:53):
touching ceremony called the We Move Ceremony before we start
the actual walk. Everybody's welcome to participate. It's a time
where we honor all of the different categories of people
that are there that day, folks that are living with PD,
caregivers of people with PD, family and loved ones of
people with PD, and then what we just kind of
(06:14):
call like advocates. We have a lot of healthcare professionals
that show up and support physical therapists, occupational therapists, neurologists.
We have great support from Couttering Health and Premier Health
as well this year, so that's fantastic. But we have
representation from those folks as well.
Speaker 1 (06:31):
So Breck, if you can take us back to we're
talking about Parkinson's disease here in the Moving Day, which
is coming up September twenty eighth. For those of you
just tuning in, when could you tell something was different
with your dad? But for everybody listening, they might benefit
from hearing, you know, when you started seeing some signs
(06:51):
that something was maybe happening, something was off.
Speaker 2 (06:54):
Sure with my dad, he had a couple of unexpected
falls that he couldn't quite explain what happened. You know,
it wasn't there wasn't an obvious answer as to why
he had taken a tumble. It's not like he tripped
on something or anything like that. And that brought about
a doctor's visit, some tests that then gave us this diagnosis.
(07:16):
It's different for everyone, though. That is kind of the
hallmark of this disease, is it's different for everyone. I
was at a conference once and someone's a neurologist on
stage said, if you've met one person with Parkinson's, you've
met one person with Parkinson's, because it's so unique and
different for each person. But surely you know tremors can
(07:38):
be a sign some people have little shakes or movements
with their hands that come on suddenly and they're not
sure what's happening with that. People like my dad who
maybe have falls or find that their footing is a
little off, their gates a little off. There can be
cognitive mental kind of symptoms that present themselves first as well.
(08:00):
A lot of people have issues with taste and smell.
That can be even a interesting little symptom that can occur,
which is I guess kind of confusing with COVID since
that was such a big symptom for that.
Speaker 1 (08:14):
Yeah, symptom, Yeah really was, so that obviously it's very
very personal to you. Yes, you saw your dad go
through this. You and your mom were caregivers. That's probably
makes you want to just get everybody together for moving
day and help out, because you want to help out
all those other folks who may go through the same thing.
(08:36):
What would you think, just like looking at because obviously
would you say you didn't know a whole lot about
Parkinson's before this.
Speaker 2 (08:43):
I knew Michael J. Fox had Parkinson's and that's about it,
and that was it, and.
Speaker 1 (08:47):
That's probably what most people know. So what would you
say is the most common misunderstanding or just lack of
education that people have about Parkinson's.
Speaker 2 (08:59):
I would say the first one thing I would want
to say is that there's a it is possible to
have a good quality of life with Parkinson's. That's the
first thing with treatment, medications, getting in with a good
neurologist or movement disorder specialist and getting care. That's number one.
We are seeing big increases in the number of people
(09:21):
living with PD in the United States right now, but
we believe that is because of awareness and that folks
are actually getting out and getting to their doctors and
getting diagnosis where perhaps previously they weren't doing that. So
Number one, I would say, you can have a good
quality of life. Number two, it is so important to
find yourself a doctor, a movement disorder specialist, a neurologist
(09:46):
who you have a good relationship with that you can
talk to and they understand you and you guys are
sympatico in what should be happening with your treatment. The
next thing I would say is exercise X exercise exercise.
That is the one thing that everyone agrees upon is
exercise is a huge key component for best quality of
(10:09):
life for people living with Parkinson's. It just is, it's
a deal breaker. It's a game changer. You have to
get out and move whatever that is, walking, swimming, biking,
whatever it is. Whatever you're able to do, whatever you enjoy,
get out and do it. You can't just sit, which.
Speaker 1 (10:27):
Is probably another reason why people should be trying to
get ahead of that and be doing that every day anyway, yep,
because our lives can be very sedentary, and I would
imagine that sitting around for long periods of time could
be something that eventually leads to early could be a
cause eventually for Parkinson's. Is that why it's called moving day?
(10:49):
Obviously we're just trying to get everybody moving here.
Speaker 2 (10:50):
Yeah, yeah, yeah, absolutely, moving day. So get out and
move with us. That's the concept. It's as simple as that.
Just move. And with our walk we two different routes.
We have like a little bit of a longer walking path.
We also have a shorter walking path that we mark.
So again it's a walk to your ability event. It's
not you know, a five k or whatever. It's just
(11:14):
come out and move you If you go a little
piece and then you give you say that's enough for me,
That's okay. No, one's pressuring you. It's up to you.
Speaker 1 (11:23):
Yeah, no, because sometimes people do feel pressure like that.
I don't know if I can do a five K
or whatever. Right, it's not like that. Just trying to
get a group of people out for one cause and
get them moving. It's coming up on September twenty eighth,
so it's about about four weeks away. And I didn't
realize that that after Alzheimer's, it's the fourteenth leading cause
(11:45):
of death in the US.
Speaker 2 (11:48):
It is. It affects so many people that we just
don't even realize. It's really the numbers are growing, like
I said, and it's just so important to get awareness
out there so that we can be supportive of one another.
And that's a big part of the walk as well,
is yes, we want people to get out and move,
but we also want people with Parkinson's to get out
and be with other folks that are in the same situations.
(12:10):
There's a fellowship that occurs amongst the loved ones and
the people with PD and the medical professionals, which is awesome.
We have a lot of great representation from healthcare professionals
that work with folks with PD, Occupational therapists, physical therapists,
those sort of things that come to the event. They
do we have well this year we'll have representation from
(12:31):
Premiere and Cattering on our stage doing some great exercises
to show demos of things that are really fantastic for
folks with PD to do to keep that movement going.
Speaker 1 (12:43):
Okay, and real quick, we just have like two minutes left,
give me about sixty seconds. You were talking about what
the Michael J. Fox Foundation, what that flows into specifically
from Michael J. Fox.
Speaker 2 (12:55):
Sure, it's a question we frequently get. What's the difference
between Michael J. Fox Foundation and the Parkinson's Foundation. Michael J.
Fox Foundation is research driven completely. The Parkinson's Foundation, which
I represent, they are Our goal is to make life
better for those living with Parkinson's right now. So we
are supporting people with PD, their families, their loved ones, caregivers,
(13:18):
healthcare professionals in their day to day. We are hosting
educational events, doing educational materials. We are doing a lot
of grants to support exercise groups, support groups, those sort
of things, educational, getting awareness out there, hosting moving days
to get the word out and that sort of thing.
(13:38):
So that's kind of our mission statement is making life
better with Parkinson for people living with Parkinson's, and I
can personally attest to that is true. They are mission accomplished.
Speaker 1 (13:49):
That's awesome. Ninety thousand new cases are diagnosed each year
in the US alone, So you know, chances are you
probably know somebody. Moving Day is coming up in four
we So for our last sixty seconds here Breck just
kind of tell everybody again where it is, how to
sign up, how to get involved.
Speaker 2 (14:06):
Come see us on September the twenty eighth. It's a Saturday,
nine am for registration, ten am for the walk over
at phrase Pavilion for Moving Day Dayton twenty twenty four.
You can go to Moving Day Dayton dot org to
register and make a donation. And additionally you can go
to Parkinson dot org to get all kinds of materials,
(14:28):
educational materials. There's a newly diagnosed kit. If you are
someone who's listening and you've recently had a conversation with
your doctor and you need some help, there's links on
there to get you connected with support groups, exercise groups,
help find a neurologist or movement disorder specialist. So there's
all kinds of great support there and available to you
for free.
Speaker 1 (14:48):
Awesome. That's great, Breck, your dad would be very very proud.
Speaker 2 (14:51):
Thank you for saying that. Jef